The life of Inky
Michiko Kakutani on Oliver Sacks:
Those case studies captured the emotional and metaphysical, as well as physiological, dimensions of his patients’ conditions. While they tracked the costs and isolation these individuals often endured, they also emphasized people’s resilience — their ability to adapt to their “deficits,” enabling them to hold onto a sense of identity and agency. Some even find that their conditions spur them to startling creative achievement.
I remember reading one of his books in a book group years ago and getting into an intense argument about that ability to adapt to “deficits”…arguing over Temple Grandin, and what she said about experiencing being Temple Grandin. I argued that from her perspective her autism wasn’t a deficit, it was just being Temple Grandin, and it gave her some skills that are particular to autism. The other party argued that what she was missing out on was a real deficit, and that it made her life less good than that of neurotypical people. I still don’t buy that.
In fact, Dr. Sacks wrote in “An Anthropologist on Mars,” that illnesses and disorders “can play a paradoxical role in bringing out latent powers, developments, evolutions, forms of life that might never be seen or even be imaginable in their absence.” A young woman with a low I.Q. learns to sing arias in more than 30 languages, and a Canadian physician with Tourette’s syndrome learns to perform long, complicated surgical procedures without a single tic or twitch. Some scholars believe, Dr. Sacks once wrote, that Dostoyevsky and van Gogh may have had temporal lobe epilepsy, that Bartok and Wittgenstein may have been autistic, and that Mozart and Samuel Johnson could have had Tourette’s syndrome.
See that’s why I don’t buy that you have to have all the usual “normal” skills and experiences to have a good life. I think an odd eccentric life can be a good life too, because different people want different things.
Animated by a self-deprecating sense of humor and set down in limber, pointillist prose, Dr. Sacks’s autobiographical accounts are as candid and searching as his writings about his patients, and they suggest just how rooted his compassion and intuitive understanding — as a doctor and a writer — were in his youthful feelings of fear and dislocation. He tells us about the lasting shock of being evacuated from London as a boy during the war, and being beaten and bullied at boarding school. The rest of his life, he writes, he would have trouble with the three B’s: “bonding, belonging, and believing.”
And yet he was Oliver Sacks. Who would wish he had been different?
Dr. Sacks once described himself as a man with an “extreme immoderation in all my passions,” and his books pulsate with his “violent enthusiasms” and endless curiosity: his fascination with ferns, cephalopods, jellyfish, volcanoes, the periodic table — for all the marvels of the natural world; as well as his passion for swimming, chemistry, photography and perhaps most of all, writing. Known as Inky as a child, he began keeping journals at the age of 14. For the shy boy, writing was a way to connect with the world, a way to order his thoughts; and he kept up the habit throughout his life, amassing nearly a thousand journals, while using his books and essays to communicate to readers the romance of science and the creative and creaturely blessings of being alive.
I identify as an Inky.
His patients have lost an erudite and compassionate doctor. The world has lost a writer of immense talent and heart, a writer who helped illuminate the wonders, losses and consolations of the human condition.
We still have his books though.
One weird flash of recollection: In a fantastic childrens’ novel, Deep Sea Pirates or some such, Eric Linklater has a pirate character named Inky Poops, whose name reverbs with one of the two hero girls as a recurring curse (“Surrounded by scoundrels and nincompoops!”). His comrade was called Dan Scumbril, by the way.
It’s still a mystery to me why I remember these made-up factoids half a century later, when I read the books in translation; albeit many times.
Somehow I hope and wonder whether Oliver Sacks also read these books as a young person.
I should read some of these. I have only as an adult realized how many signs of autism spectrum I have and also came to find joy in math. My skills are not always the skills that lead to the common ideas of success, but I have many rare talents that have their own merit.
Ah you should. I just requested a bunch at the library. He’s such a good writer, along with the goodness of the content. Such a mensch.
An able bodied/neurotypical brain/hearing person is in no position to declare that anyone different from him has any kind of deficit. Deaf signers regard hearing non signing people as quite disabled because spoken languages are so impoverished, not using space or hands, eyegaze or facial movements very well or very much. Seriously. As a hearing signer I see that “deficit” in the poor hearing people who only use spoken languages . . . poor darlings.
I wonder if I had the background to know that from you, Claire. It was what Sacks said about Temple Grandin, but maybe it made more sense to me than it did to the other party because you’d educated me.
How typical is a Temple Grandin though? One of the problems with the case study method is the attraction to cases that are interesting precisely because they are out of the ordinary.
Certainly many people on the autism spectrum, for example, need assistance; many of them are afflicted with problems related to their autism like social isolation and poverty. They don’t automatically get compensating superpowers that balance out a burden they will struggle with their whole lives.